Learn all you can about lupus. Write down any questions you have about lupus as they occur to you so that you can ask them at your next appointment. Ask your doctor or nurse for reputable sources of further information. The more you know about lupus, the more confident you'll feel in your treatment choices. Gather support among your friends and family. Talk about lupus with your friends and family and explain ways they can help out when you're having flares.
Lupus can be frustrating for your loved ones because they usually can't see it, and you may not appear sick. Family and friends can't tell if you're having a good day or a bad day unless you tell them. Be open about what you're feeling so that your loved ones know what to expect.
Managing Common Symptoms
Take time for yourself. Cope with stress in your life by taking time for yourself. Use that time to read, meditate, listen to music or write in a journal. Find activities that calm and renew you. Connect with others who have lupus. Talk to other people who have lupus.
COPING WITH LUPUS IN "THE REAL WORLD" * A Million And One Ideas
You can connect with other people who have lupus through support groups in your community or through online message boards. Other people with lupus can offer unique support because they're facing many of the same obstacles and frustrations that you're facing. You're likely to start by seeing your primary care doctor, but he or she may refer you to a specialist in the diagnosis and treatment of inflammatory joint conditions and immune disorders rheumatologist.
Because the symptoms of lupus can mimic so many other health problems, you may need patience while waiting for a diagnosis. Your doctor must rule out a number of other illnesses before diagnosing lupus. You may need to see a number of specialists such as doctors who treat kidney problems nephrologists , blood disorders hematologists or nervous system disorders neurologists depending on your symptoms to help with diagnosis and treatment.
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something. Your doctor is likely to ask you a number of questions.
Being ready to answer them may leave time to go over any points you want to spend more time on. Your doctor may ask:. Mayo Clinic does not endorse companies or products. Advertising revenue supports our not-for-profit mission. This content does not have an English version. This content does not have an Arabic version.
Diagnosis Diagnosing lupus is difficult because signs and symptoms vary considerably from person to person. Request an Appointment at Mayo Clinic. Share on: Facebook Twitter. References Ferri FF. Systemic lupus erythematosus.
In: Ferri's Clinical Advisor Philadelphia, Pa. Accessed Sept. Research News. Advocacy for Research. Make a Donation Now. Give Monthly. Give In Memory or Honor.
Life stress and coping styles related to cognition in systemic lupus erythematosus
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Healthy Lifestyle Choices for Managing Lupus Symptoms
Make adjustments as a family Good communication is important for helping your family adjust to a lupus diagnosis. Managing work with lupus Many people with lupus can continue to work, although they may need to make changes in their work environment. Managing school with lupus Many people who have lupus are successful at school while preparing to pursue their dreams.
Download this guide. Select a language. Related Resources. Coping with the cognitive symptoms of lupus. Lupus and depression: Know the signs and how to get help. Was this resource helpful? Yes No. Coping with lupus. Don't miss the next research breakthrough.